This repository is under review for potential modification in compliance with Administration directives.
The AMP PD Knowledge Portal was developed to host and share resources related to Parkinson’s disease research and remains fully operational. We continue to maintain and accept Parkinson’s disease and related disorders data and resources throughout this review process.
Approved Data Access Requests
| First Name | Last Name | Institution/Company | Proposed Analysis | Date Approved |
|---|---|---|---|---|
| Feruza | Sultamuratova | Al-Farabi Kazakh National University |
Research objectives: This study aims to investigate clinical, imaging, and biomarker factors associated with Parkinson's disease progression using the AMP PD dataset. The findings will complement an ongoing PhD project evaluating motor and non-motor manifestations of Parkinson's disease and support a better understanding of disease heterogeneity and patient stratification for advanced therapies, including deep brain stimulation (DBS). Study design: A retrospective observational study will be conducted using de-identified longitudinal data available within the AMP PD platform. Demographic, clinical, neuroimaging, biospecimen, and genetic variables will be analyzed where available. Analysis plan: Descriptive statistics will summarize baseline characteristics. Associations between disease severity, motor and non-motor symptoms, cognitive function, and available biomarkers will be evaluated using appropriate univariate and multivariable statistical methods. Longitudinal analyses will assess factors associated with disease progression over time. Findings will be compared with data from our institutional cohort to identify similarities and differences in clinical trajectories. Research use alignment with data use limitations: The AMP PD data will be used exclusively for non-commercial academic research. All analyses will comply with AMP PD Data Use Agreements and institutional ethical requirements. Only de-identified participant data will be accessed, no attempts will be made to re-identify individuals, and results will be reported only in aggregate form. |
Total Approved Users: 540
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